How we think about dementia : personhood, rights, ethics, the arts and what they mean for care

Hughes, Julian C.

How we think about dementia : personhood, rights, ethics, the arts and what they mean for care - London Jessica Kingsley 2014

Our changing expectations of life: what do we really want? -- Research, ageing and dementia -- Memory: inner or outer? -- I am still the same person? The body in dementia -- 'Capacity': what is it and so what? -- Capacity legislation in practice: balancing the personal and the polis -- Incapacity and mental disorder -- Beyond hypercognitivism -- Understanding the language of distress -- Ethics, patterns, causes and pathways: in pursuit of good palliative care -- Intentions and best interests: dying and killing -- The art and practice of memory and forgetting -- In praise of 'negative capability' -- Conclusion: care - solicitude and solidarity.

Includes bibliographical references and index. Exploring concepts of ageing, personhood, capacity, liberty, best interests and the nature and ethics of palliative care, this book will help those in the caring professions to understand and engage with the thoughts and arguments underpinning the experience of dementia and dementia care. Dementia is associated with ageing: what is the significance of this? People speak about person-centred care, but what is personhood and how can it be maintained? What is capacity, and how is it linked with the way a person with dementia is cared for as a human being? How should we think about the law in relation to the care of older people? Is palliative care the right approach to dementia, and if so what are the consequences of this view? What role can the arts play in ensuring quality of life for people with dementia? In answering such questions, Julian Hughes brings our attention back to the philosophical and ethical underpinnings of dementia care, shedding new light on the significance and implications for those in the caring professions, academics and researchers, and those living with dementia and their families.

1849054770 9781849054775 (pbk.) ; 9780857008558 (eISBN)


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