MARC details
| 000 -LEADER |
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| fixed length control field |
07081cam a2200745 i 4500 |
| 001 - CONTROL NUMBER |
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| control field |
ocn928987791 |
| 003 - CONTROL NUMBER IDENTIFIER |
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| control field |
OCoLC |
| 005 - DATE AND TIME OF LATEST TRANSACTION |
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| control field |
20221128212926.0 |
| 006 - FIXED-LENGTH DATA ELEMENTS--ADDITIONAL MATERIAL CHARACTERISTICS--GENERAL INFORMATION |
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m d |
| 007 - PHYSICAL DESCRIPTION FIXED FIELD--GENERAL INFORMATION |
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cr cn||||||||| |
| 008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION |
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151002s2015 dcuac obt 100 0 eng |
| 010 ## - LIBRARY OF CONGRESS CONTROL NUMBER |
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| LC control number |
2016304707 |
| 040 ## - CATALOGING SOURCE |
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| Original cataloging agency |
NLM |
| 016 7# - NATIONAL BIBLIOGRAPHIC AGENCY CONTROL NUMBER |
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| Record control number |
101669672 |
| Source |
DNLM |
| 019 ## - |
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919512264 |
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1021274003 |
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1262676839 |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER |
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| ISBN |
9780309374422 |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER |
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| ISBN |
0309374421 |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER |
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| Cancelled/invalid ISBN |
9780309374415 |
| 020 ## - INTERNATIONAL STANDARD BOOK NUMBER |
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| Cancelled/invalid ISBN |
0309374413 |
| 035 ## - SYSTEM CONTROL NUMBER |
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| System control number |
1029483 |
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(N$T) |
| 035 ## - SYSTEM CONTROL NUMBER |
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| System control number |
(OCoLC)928987791 |
| Canceled/invalid control number |
(OCoLC)919512264 |
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(OCoLC)1021274003 |
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(OCoLC)1262676839 |
| 042 ## - AUTHENTICATION CODE |
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| Authentication code |
pcc |
| 043 ## - GEOGRAPHIC AREA CODE |
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| Geographic area code |
n-us--- |
| 060 00 - NATIONAL LIBRARY OF MEDICINE CALL NUMBER |
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| Classification number |
2015 K-965 |
| 060 10 - NATIONAL LIBRARY OF MEDICINE CALL NUMBER |
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| Classification number |
QZ 275 |
| 072 #7 - SUBJECT CATEGORY CODE |
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| Subject category code |
MED |
| Subject category code subdivision |
033000 |
| Source |
bisacsh |
| 049 ## - LOCAL HOLDINGS (OCLC) |
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| Holding library |
MAIN |
| 100 1# - MAIN ENTRY--PERSONAL NAME |
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| Personal author |
Nass, Sharyl J., |
| Relator term |
rapporteur. |
| 245 10 - TITLE STATEMENT |
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| Title |
Comprehensive cancer care for children and their families : |
| Subtitle |
summary of a joint workshop by the Institute of Medicine and the American Cancer Society |
| Statement of responsibility, etc |
|
| Medium |
[E-Book] |
| 264 #1 - PRODUCTION, PUBLICATION, DISTRIBUTION, MANUFACTURE, AND COPYRIGHT NOTICE |
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| Place of production, publication, distribution, manufacture |
Washington, D.C. : |
| Name of producer, publisher, distributor, manufacturer |
National Academies Press, |
| Date of production, publication, distribution, manufacture, or copyright notice |
[2015] |
| 300 ## - PHYSICAL DESCRIPTION |
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| Physical description |
1 online resource (1 PDF file (xx, 106 pages)) : |
| Other physical details |
illustrations, portraits |
| 336 ## - CONTENT TYPE |
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| Content type term |
text |
| Content type code |
txt |
| Source |
rdacontent |
| 337 ## - MEDIA TYPE |
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| Media type term |
computer |
| Media type code |
c |
| Source |
rdamedia |
| 338 ## - CARRIER TYPE |
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| Carrier type term |
online resource |
| Carrier type code |
cr |
| Source |
rdacarrier |
| 500 ## - GENERAL NOTE |
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| General note |
Title from PDF title page. |
| 504 ## - BIBLIOGRAPHY, ETC. NOTE |
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| Bibliography, etc |
Includes bibliographical references. |
| 520 3# - ABSTRACT |
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| Abstract |
Childhood cancer is an area of oncology that has seen both remarkable progress as well as substantial continuing challenges. While survival rates for some pediatric cancers present a story of success, for many types of pediatric cancers, little progress has been made. Many cancer treatments are known to cause not only significant acute side effects, but also lead to numerous long-term health risks and reduced quality of life. Even in cases where the cancer is considered curable, the consequences of treatment present substantial long-term health and psychosocial concerns for children, their families, their communities, and our health system. To examine specific opportunities and suggestions for driving optimal care delivery supporting survival with high quality of life, the National Cancer Policy Forum of the Institute of Medicine and the American Cancer Society co-hosted a workshop which convened experts and members of the public on March 9 and 10, 2015. At this workshop, clinicians and researchers in pediatric oncology, palliative, and psychosocial care, along with representatives from the U.S. Food and Drug Administration, National Cancer Institute, Children's Oncology Group, pharmaceutical companies, and patient advocacy organizations, discussed and developed a menu of options for action to improve research, quality of care, and outcomes for pediatric cancer patients and their families. In addition, parents of children with cancer and pediatric cancer survivors shared their experiences with care and provided poignant personal perspectives on specific quality of life concerns and support needs for children and families across the life spectrum. This report summarizes the presentations and discussion of the workshop. |
| 505 0# - CONTENTS |
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| Contents |
Overview Of The Current Landscape In Pediatric Cancer Research And Treatment -- Trends and Challenges in Developing Drugs for Pediatric Cancer -- Integrating Pediatric Palliative Care: Ensuring Child And Family Well-Being Along The Continuum -- Generalist Plus Specialist Palliative Care -- End-of-Life Care and Bereavement Care -- The Role of Communication -- Policy Opportunities to Improve Pediatric Palliative Care Across the Care Continuum -- Psychosocial Challenges And Opportunities -- Psychosocial Needs for Pediatric Patients -- Psychosocial Needs of Families -- Predicting and Screening for Distress -- Parental Interventions to Alleviate Distress -- Building Capacity for Psychosocial Care -- Psychosocial Care Standards -- Research Needs -- Detecting Pain And Suffering -- PROs in Clinical Research -- PROs in Clinical Care -- The State of the Science for Pediatric PROs -- Parents as Proxies -- Long-Term Effects -- Predicting Complications -- Screening for and Preventing Complications -- Improving Care Transitions -- Transitioning Off Treatment to Follow-Up Care -- Transitioning to Adult Follow-Up Care -- Supporting Providers -- Supporting Patients -- Models of Survivorship Care -- Research Needs -- Pediatric Oncology Data Collection And Registries -- Integrating Databases for Research -- Pediatric Proton Consortium Registry -- Measuring Poverty and Its Impacts -- Wrap-Up. |
| 590 ## - LOCAL NOTE (RLIN) |
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| Local note |
WorldCat record variable field(s) change: 650 |
| 650 #0 - SUBJECT HEADINGS |
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| Subject term |
Cancer in children |
| General subdivision |
Treatment |
| 650 #0 - SUBJECT HEADINGS |
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| Subject term |
Cancer in children |
| General subdivision |
Patients |
| -- |
Care |
| 650 #0 - SUBJECT HEADINGS |
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| Subject term |
Tumors |
| General subdivision |
Treatment |
| Geographic subdivision |
United States |
| 650 #0 - SUBJECT HEADINGS |
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| Subject term |
Tumors |
| General subdivision |
Complications |
| Geographic subdivision |
United States |
| 650 #0 - SUBJECT HEADINGS |
|---|
| Subject term |
Palliative treatment |
| Geographic subdivision |
United States |
| 650 #0 - SUBJECT HEADINGS |
|---|
| Subject term |
Terminal care |
| Geographic subdivision |
United States |
| 650 #0 - SUBJECT HEADINGS |
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| Subject term |
Children. |
| 650 #0 - SUBJECT HEADINGS |
|---|
| Subject term |
Palliative treatment. |
| 650 12 - SUBJECT HEADINGS |
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| Subject term |
Child |
| 650 12 - SUBJECT HEADINGS |
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| Subject term |
Neoplasms |
| General subdivision |
therapy |
| 650 22 - SUBJECT HEADINGS |
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| Subject term |
Palliative Care |
| 700 1# - ADDED PERSONAL NAME |
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| Added personal author |
Patlak, Margie, |
| Relator term |
rapporteur. |
| 710 2# - ADDED CORPORATE NAME |
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| Added corporate author |
National Cancer Policy Forum (U.S.), |
| Relator term |
issuing body, |
| -- |
organizer. |
| 711 2# - ADDED ENTRY--MEETING NAME |
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| Meeting name or jurisdiction name as entry element |
Comprehensive Cancer Care for Children and Their Families (Workshop) |
| 856 40 - ONLINE RESOURCE |
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| Uniform Resource Identifier |
<a href="https://search.ebscohost.com/login.aspx?custid=ns123844&authtype=ip,shib&direct=true&scope=site&db=nlebk&db=nlabk&AN=1029483">https://search.ebscohost.com/login.aspx?custid=ns123844&authtype=ip,shib&direct=true&scope=site&db=nlebk&db=nlabk&AN=1029483</a> |
| Link text |
Kingston Hospital NHS Foundation Trust OpenAthens account holders click here for access |
| 942 ## - ADDED ENTRY ELEMENTS (KOHA) |
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| Suppress in OPAC |
Do not Suppress in OPAC |
| 536 ## - FUNDING INFORMATION NOTE |
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| Text of note |
This activity was co-sponsored by the American Cancer Society. The project was also supported by Contract No. HHSN261200900003C and Contract No. HHSN263201200074I (Task Order No. HHSN26300052) between the National Academy of Sciences and the Centers for Disease Control and Prevention and the National Cancer Institute/National Institutes of Health, respectively, and by the American Association for Cancer Research, American Society for Radiation Oncology, American Society of Clinical Oncology, American Society of Hematology, Association of American Cancer Institutes, AstraZeneca, Bristol-Myers Squibb, C-Change, Cancer Support Community, CEO Roundtable on Cancer, EMD Serono, Helsinn Healthcare SA, LIVESTRONG Foundation, National Comprehensive Cancer Network, Novartis Oncology, Oncology Nursing Society, and Sanofi Oncology. |
| 588 0# - SOURCE OF DESCRIPTION NOTE |
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| Source of description note |
Version viewed November 6, 2015. |
| 651 #7 - SUBJECT ADDED ENTRY--GEOGRAPHIC NAME |
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| Geographic name |
United States. |
| Authority record control number |
(OCoLC)fst01204155 |
| 938 ## - |
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Askews and Holts Library Services |
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ASKH |
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AH36564514 |
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Askews and Holts Library Services |
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ASKH |
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AH36618122 |
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EBL - Ebook Library |
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EBLB |
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EBL4720470 |
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EBSCOhost |
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EBSC |
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1029483 |
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YBP Library Services |
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YANK |
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12611296 |
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92 |
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N$T |