Learning from paediatric patient journeys : what children and their families can tell us

Good healthcare is about more than making a diagnosis and giving the correct medical treatment - the experience of those going through the system is hugely important. As a result, the use of patient stories or “narratives” in learning is gathering significant support and interest. This is a collection of such narratives from children and from the parents of children with a range of long-term or complex conditions. They would be useful for medical students and instructors, but also for anyone working for children with chronic and complex conditions, including nurses and other allied health professionals, as well as psychology students. There are also essays on points arising from a parent and from those involved as a tutor and as a student.