TY - BOOK AU - Ford,Morgan A. AU - Spicer,Carol Mason TI - Monitoring HIV Care in the United States: Indicators and Data Systems SN - 9780309218511 PY - 2012/// CY - Washington, D.C. PB - National Academies Press KW - HIV infections KW - Epidemiology KW - AIDS (Disease) KW - Public health KW - Immunological deficiency syndromes KW - Lentivirus infections KW - Slow virus diseases KW - Retrovirus infections KW - Immunologic diseases KW - Sexually transmitted diseases KW - Virus diseases KW - Diseases KW - Medical personnel KW - Medical care KW - Information storage and retrieval systems KW - Medical Informatics Applications KW - Health Care Evaluation Mechanisms KW - Epidemiologic Methods KW - Public Health KW - Health Surveys KW - Public Health Practice KW - Sexually Transmitted Diseases, Viral KW - Information Science KW - Immunologic Deficiency Syndromes KW - Lentivirus Infections KW - Slow Virus Diseases KW - Retroviridae Infections KW - Immune System Diseases KW - Quality of Health Care KW - Sexually Transmitted Diseases KW - Medical Informatics KW - Medicine KW - Investigative Techniques KW - Virus Diseases KW - Disease KW - Environment and Public Health KW - Health Occupations KW - RNA Virus Infections KW - Analytical, Diagnostic and Therapeutic Techniques and Equipment KW - Health Care Quality, Access, and Evaluation KW - Delivery of Health Care KW - Disciplines and Occupations KW - Acquired Immunodeficiency Syndrome KW - HIV Infections KW - Data Collection KW - Information Systems KW - epidemiology KW - prevention & control KW - statistics & numerical data KW - Data Interpretation, Statistical KW - Population Surveillance N1 - Includes bibliographical references; Introduction -- Indicators related to continuous HIV care and access to supportive services -- Sources of data on HIV care to assess indicators of HIV care and access to supportive services -- Barriers to the collection of HIV care data -- The role of health information technology and data system integration in the collection of HIV care data -- Efficient analysis of HIV care indicators and dissemination of data by Federal Agencies N2 - "The number of people living with HIV/AIDS (PLWHA) in the United States is growing each year largely due both to advances in treatment that allow HIV-infected individuals to live longer and healthier lives and due to a steady number of new HIV infections each year. The U.S. Centers for Disease Control and Prevention (CDC) estimates that there were 1.2 million people living with HIV infection in the United States at the end of 2008, the most recent year for which national prevalence data are available. Each year, approximately 16,000 individuals die from AIDS despite overall improvements in survival, and 50,000 individuals become newly infected with HIV. In 2011, the CDC estimated that about three in four people living with diagnosed HIV infection are linked to care within 3 to 4 months of diagnosis and that only half are retained in ongoing care. In the context of the continuing challenges posed by HIV, the White House Office of National AIDS Policy (ONAP) released a National HIV/AIDS Strategy (NHAS) for the United States in July 2010. The primary goals of the NHAS are to: reduce HIV incidence; increase access to care and optimize health outcomes; and reduce HIV-related health disparities. Monitoring HIV Care in the United States addresses existing gaps in the collection, analysis, and integration of data on the care and treatment experiences of PLWHA. This report identifies critical data and indicators related to continuous HIV care and access to supportive services, assesses the impact of the NHAS and the ACA on improvements in HIV care, and identifies public and private data systems that capture the data needed to estimate these indicators. In addition, this report addresses a series of specific questions related to the collection, analysis, and dissemination of such data. Monitoring HIV Care in the United States is the first of two reports to be prepared by this study. In a forthcoming report, also requested by ONAP, the committee will address the broad question of how to obtain national estimates that characterize the health care of people living with HIV in the United States. The second report will include discussion of challenges and best practices from previous large scale and nationally representative studies of PLWHA as well as other populations"--Publisher's description UR - https://search.ebscohost.com/login.aspx?custid=ns123844&authtype=ip,shib&direct=true&scope=site&db=nlebk&db=nlabk&AN=476041 ER -